We have an appointment with a perinatal specialist to follow up and confirm baby Jackson's diagnosis of club feet and rule out any other issues. Since there was some discussion between the ladies doing our first ultrasound about whether it was club feet or rocker bottom feet - coupled with the choriod plexus cyst, our midwife thinks its smart to follow up with a specialist and we agree!
Our appointment is next Tuesday, March 16. We are thankful to be getting more information so quickly.
Please continue to pray for healing for Jackson as well as wisdom for this new doctor!
We are hopeful!
Showing posts with label Clubfoot. Show all posts
Showing posts with label Clubfoot. Show all posts
Monday, March 08, 2010
Thursday, March 04, 2010
Clubfoot Info
Writing is my therapy, so there may be more blog posts than anyone cares to read for a while. :)
Now that I've had a little time to read online, I can share what limited information I have about our little baby boy's condition.
Before I do that, let me add a prayer need. Eddie and I just watched the 4-D ultrasound DVD we rec'd last night. On it is the official paperwork about what the technician saw. Something that wasn't really discussed with us last night is something called a choriod plexus cyst. Apparently, this is fairly common and typically disappears by the 6th month. It could also be a symptom of a chromosomal anomaly. Please pray that it goes away before my next ultrasound and that there is nothing further wrong with our baby!
Is it possible to be both ENcouraged and DIScouraged all at once? That is the only way I can describe how I feel tonight. I am encouraged by what I've read about treatment for clubfoot, yet on the other hand discouraged that I am facing the possibility of walking this road at all. I know in the grand scheme of things, this is a minor blip on the radar - so I am encouraged. Yet, in this moment, my mother's heart is broken and I am discouraged. I fully trust in God's perfect plan for me, my baby and our family and therefore I am very encouraged. And yet there is a pain I just can't describe. Thankfully, His mercies are new every morning!!!
Best I can tell - treatment for clubfoot entails serial casting which begins around 1-2 weeks of age. The casts are changed each week and the feet are manipulated slowly to the correct position. This generally last 6-8 weeks. The heel chords are then released followed by another cast for 3 weeks. After that, a brace is worn - possibly all day for a few months, but then just at night for 2 years. There is another treatment that involves lots of physical therapy, stretching, taping, etc = but also last 2 years. Both have about a 95% success rate according to a study I read about. This is encouraging news.
We would really prefer not to walk this road, but we are willing to go where God sends us. I know that if this is the journey He has called us to, He will fully equip us to walk it. I have already seen Him faithful in that. Sometimes people say, "God never gives you more than you can handle." I can assure you that giving me a child with Down Syndrome was more than I could handle. Thankfully, God has been faithful to equip us with every step ... and I know He will do the same with this.
I am sure I will have more information as the weeks go on - and hopefully more specifically from an orthopedist who will treat the baby after birth (if necessary, of course ... I am still believing God for that miracle healing!!!!)
Thanks for praying for and with us!
Now that I've had a little time to read online, I can share what limited information I have about our little baby boy's condition.
Before I do that, let me add a prayer need. Eddie and I just watched the 4-D ultrasound DVD we rec'd last night. On it is the official paperwork about what the technician saw. Something that wasn't really discussed with us last night is something called a choriod plexus cyst. Apparently, this is fairly common and typically disappears by the 6th month. It could also be a symptom of a chromosomal anomaly. Please pray that it goes away before my next ultrasound and that there is nothing further wrong with our baby!
Is it possible to be both ENcouraged and DIScouraged all at once? That is the only way I can describe how I feel tonight. I am encouraged by what I've read about treatment for clubfoot, yet on the other hand discouraged that I am facing the possibility of walking this road at all. I know in the grand scheme of things, this is a minor blip on the radar - so I am encouraged. Yet, in this moment, my mother's heart is broken and I am discouraged. I fully trust in God's perfect plan for me, my baby and our family and therefore I am very encouraged. And yet there is a pain I just can't describe. Thankfully, His mercies are new every morning!!!
Best I can tell - treatment for clubfoot entails serial casting which begins around 1-2 weeks of age. The casts are changed each week and the feet are manipulated slowly to the correct position. This generally last 6-8 weeks. The heel chords are then released followed by another cast for 3 weeks. After that, a brace is worn - possibly all day for a few months, but then just at night for 2 years. There is another treatment that involves lots of physical therapy, stretching, taping, etc = but also last 2 years. Both have about a 95% success rate according to a study I read about. This is encouraging news.
We would really prefer not to walk this road, but we are willing to go where God sends us. I know that if this is the journey He has called us to, He will fully equip us to walk it. I have already seen Him faithful in that. Sometimes people say, "God never gives you more than you can handle." I can assure you that giving me a child with Down Syndrome was more than I could handle. Thankfully, God has been faithful to equip us with every step ... and I know He will do the same with this.
I am sure I will have more information as the weeks go on - and hopefully more specifically from an orthopedist who will treat the baby after birth (if necessary, of course ... I am still believing God for that miracle healing!!!!)
Thanks for praying for and with us!
Its another ... BOY!!!
We are very excited to learn that we are expecting another baby boy!
We also learned from our ultrasound that our sweet boy has club feet. They are called "club" because it resembles a golf club. His little feet both turn in at the ankles. He is otherwise perfectly developing and healthy, but we are heart broken to begin a journey with a birth defect once again. Not the words any parent wants to hear - and certainly not twice.
We really don't have a lot of information yet. We've been told that this is fixed "relatively easily" - easily if its not YOUR baby :) - and we are grateful for that.
We trust that God is in control and we know that He has a perfect plan for our little guy. And we are anxious to see His plans play out. I am only 18 weeks along, so we have some time before this baby's arrival. During that time, we are asking everyone to pray for COMPLETE HEALING! We know God is a God of miracles and we want to flood heaven with prayers for this baby. We accept and praise God for whatever outcome He desires, but will BELIEVE for a miracle! Please join us in believing and trusting God in this situation.
This has already been a roller coaster of emotion and I have no doubt it will continue to be as we move forward. I will update facebook and our family blog as I learn/know more information. In the meantime, please be praying specifically for healing as well as wisdom & peace for Ed and me - and feel free to pass this on to anyone else you know that will be a faithful prayer warrior with us!
Thanks, Angela
We also learned from our ultrasound that our sweet boy has club feet. They are called "club" because it resembles a golf club. His little feet both turn in at the ankles. He is otherwise perfectly developing and healthy, but we are heart broken to begin a journey with a birth defect once again. Not the words any parent wants to hear - and certainly not twice.
We really don't have a lot of information yet. We've been told that this is fixed "relatively easily" - easily if its not YOUR baby :) - and we are grateful for that.
We trust that God is in control and we know that He has a perfect plan for our little guy. And we are anxious to see His plans play out. I am only 18 weeks along, so we have some time before this baby's arrival. During that time, we are asking everyone to pray for COMPLETE HEALING! We know God is a God of miracles and we want to flood heaven with prayers for this baby. We accept and praise God for whatever outcome He desires, but will BELIEVE for a miracle! Please join us in believing and trusting God in this situation.
This has already been a roller coaster of emotion and I have no doubt it will continue to be as we move forward. I will update facebook and our family blog as I learn/know more information. In the meantime, please be praying specifically for healing as well as wisdom & peace for Ed and me - and feel free to pass this on to anyone else you know that will be a faithful prayer warrior with us!
Thanks, Angela
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