Wednesday, March 24, 2010

The Joy that is Jadyn!


Today my spunky little peanut, Jadyn, is 5 years old.

Its amazing how quickly life passes by when you stop to look back. Jadyn was born in Dallas and was our first homebirth. She was also my biggest baby weighing in at 10 pounds, 5 ounces!!!! Looking at the petite little thing she is now, you'd never know it! I was complaining to our chiropractor a few weeks ago about her "gerbil sized bladder" (because she ALWAYS has to go potty) and he replied, "Well, she has a gerbil sized body. What size bladder do you expect to fit in there?" LOL! Very true.

She may be small physically, but she has a BIG personality! She is very outgoing, super social, fun, full-of-life and she has added many dimensions to our family. I joke (only slightly) that I had the parenting gig figured out until she came along. She gives Ed and me a run for our money and keeps us on our parenting-toes! She is the epitome of a "strong-willed child." Although, I prefer the term, "high-spirited." :)

She is a big ol' pot of extremes. She brings great joy to our lives ... and sometimes, great frustration. She is quite independent, which will serve her well as an adult, but tends to make parenting her a tad tricky. She is charming - and knows it. She is beautiful - and is told far too frequently. She has a cute little voice - according to people who don't live with her! She is very girly, smart, sassy, busy, entertaining and just plain hilarious!

We love you, Little Miss! You have certainly made your dad and me better parents just by being YOU! And, we wouldn't trade it for anything. You are a wonderful, amazing blessing!!! Happy Birthday, sweet girl!

Tuesday, March 16, 2010

God is healing our little guy!!!

Prayer warriors, you are the best! Thank you for praying for and with us!!
We got some good news today at our appointment:
First, the cyst is already gone!!!!
Second, there were no other signs or "red flags" for any chromosome abnormalities. (That can only be confirmed by amnio, but we have declined invasive testing).
Third, Jackson's feet appear to be better than the first ultrasound indicated! His right foot is mildly clubbed and the left foot is less so!!
We are praising God and believing that our boy will be totally healed before he is born! I will have another ultrasound with the specialist in 6 weeks!
Thanks again for all the prayers ... and keep praying and believing with us for God's miraculous healing!!!!

Monday, March 08, 2010

Follow Up with a Perinatologist

We have an appointment with a perinatal specialist to follow up and confirm baby Jackson's diagnosis of club feet and rule out any other issues. Since there was some discussion between the ladies doing our first ultrasound about whether it was club feet or rocker bottom feet - coupled with the choriod plexus cyst, our midwife thinks its smart to follow up with a specialist and we agree!
Our appointment is next Tuesday, March 16. We are thankful to be getting more information so quickly.
Please continue to pray for healing for Jackson as well as wisdom for this new doctor!
We are hopeful!

Saturday, March 06, 2010

Babies with Something More

I originally posted this two years ago, but it says a lot about what I feel today ... especially the part about what mother's want. Praise God He is trustworthy to equip us for what He calls us to!

SOME MOTHERS GET BABIES WITH SOMETHING MORE by Lori Borgman, newspaper columnist and author

My friend is expecting her first child. People keep asking what she wants. She smiles demurely, shakes her head and gives the answer mothers have given throughout the ages of time. She says it doesn't matter whether it's a boy or a girl. She just wants it to have ten fingers and ten toes. Of course, that's what she says. That's what mothers have always said.

Mothers lie.

Truth be told, every mother wants a whole lot more. Every mother wants a perfectly healthy baby with a round head, rosebud lips, button nose, beautiful eyes and satin skin. Every mother wants a baby so gorgeous that people will pity the Gerber baby for being flat-out ugly.

Every mother wants a baby that will roll over, sit up and take those first steps right on schedule. Every mother wants a baby that can see, hear, run, jump and fire neurons by the billions. She wants a kid that can smack the ball out of the park and do toe points that are the envy of the entire ballet class. Call it greed if you want, but we mothers want what we want.

Some mothers get babies with something more. Some mothers get babies with conditions they can't pronounce, a spine that didn't fuse, a missing chromosome or a palette that didn't close. Most of those mothers can remember the time, the place, the shoes they were wearing and the color of the walls in the small, suffocating room where the doctor uttered the words that took their breath away. It felt like recess in the fourth grade when you didn't see the kick ball coming and it knocked the wind clean out of you.

Some mothers leave the hospital with a healthy bundle, then, months, even years later, take him in for a routine visit, or schedule her for a well check, and crash head first into a brick wall as they bear the brunt of devastating news. It can't be possible! That doesn't run in our family. Can this really be happening in our lifetime?

I am a woman who watches the Olympics for the sheer thrill of seeing finely sculpted bodies. It's not a lust thing; it's a wondrous thing. The athletes appear as specimens without flaw - rippling muscles with nary an ounce of flab or fat, virtual powerhouses of strength with lungs and limbs working in perfect harmony. Then the athlete walks over to a tote bag, rustles through the contents and pulls out an inhaler.

As I've told my own kids, be it on the way to physical therapy after a third knee surgery, or on a trip home from an echo cardiogram, there's no such thing as a perfect body. Everybody will bear something at some time or another. Maybe the affliction will be apparent to curious eyes, or maybe it will be unseen, quietly treated with trips to the doctor, medication or surgery.

The health problems our children have experienced have been minimal and manageable, so I watch with keen interest and great admiration the mothers of children with serious disabilities, and wonder how they do it. Frankly, sometimes you mothers scare me. How you lift that child in and out of a wheelchair 20 times a day. How you monitor tests, track medications, regulate diet and serve as the gatekeeper to a hundred specialists yammering in your ear. I wonder how you endure the praise and the platitudes, well-intentioned souls explaining how God is at work when you've occasionally questioned if God is on strike. I even wonder how you endure schmaltzy pieces like this one saluting you, painting you as hero and saint, when you know you’re ordinary. You snap, you bark, you bite. You didn't volunteer for this. You didn't jump up and down in the motherhood line yelling, "Choose me, God! Choose me! I've got what it takes."

You're a woman who doesn't have time to step back and put things in perspective, so, please, let me do it for you. From where I sit, you're way ahead of the pack. You've developed the strength of a draft horse while holding onto the delicacy of a daffodil. You have a heart that melts like chocolate in a glove box in July, carefully counter-balanced against the stubbornness of an Ozark mule. You can be warm and tender one minute, and when circumstances require, intense and aggressive the next. You are the mother, advocate and protector of a child with a disability. You're a neighbor, a friend, a stranger I pass at the mall. You're the woman I sit next to at church, my cousin and my sister-in-law. You're a woman who wanted ten fingers and ten toes, and got something more. You're a wonder.

Friday, March 05, 2010

And his name is ...

Jackson Erin!
We are sticking with the J.E.S. initials! Jackson is after Ed's grandparents, Momo & Pawpaw Jackson. Erin is my little brother's name.

Please keep Jackson in your prayers ... we are praying for miraculous healing because we know God is capable!

So much of our grief since learning about Jackson's club feet has more to do with remembering the feelings when we learned of Jordan's heart defect & Down Syndrome just after she was born. And, if we're honest, about feeling like this isn't fair. That we've had "our turn" with a birth defect. Sounds like a 5 year old, doesn't it? Ed's initial reaction was anger. Mine was intense sadness & fear. But, we have flipped, flopped and roller coastered all over the place since then. I am amazed at the myriad thoughts and feelings I have from one minute to the next! Not only that, but the full range of those thoughts and feelings. From sadness, anger, frustration, fear and even guilt for feeling sad when others are facing far worse circumstances and even losing their babies, to relief (that this condition is treatable), immense gratitude (knowing friends and family are praying along side us), peace, a sense of awe in the way God has already arranged the details, hope for a miraculous healing ... and on it goes.

I am hopeful about what God will do in this situation! Thank you for continuing to pray with us.

Thursday, March 04, 2010

Clubfoot Info

Writing is my therapy, so there may be more blog posts than anyone cares to read for a while. :)

Now that I've had a little time to read online, I can share what limited information I have about our little baby boy's condition.

Before I do that, let me add a prayer need. Eddie and I just watched the 4-D ultrasound DVD we rec'd last night. On it is the official paperwork about what the technician saw. Something that wasn't really discussed with us last night is something called a choriod plexus cyst. Apparently, this is fairly common and typically disappears by the 6th month. It could also be a symptom of a chromosomal anomaly. Please pray that it goes away before my next ultrasound and that there is nothing further wrong with our baby!

Is it possible to be both ENcouraged and DIScouraged all at once? That is the only way I can describe how I feel tonight. I am encouraged by what I've read about treatment for clubfoot, yet on the other hand discouraged that I am facing the possibility of walking this road at all. I know in the grand scheme of things, this is a minor blip on the radar - so I am encouraged. Yet, in this moment, my mother's heart is broken and I am discouraged. I fully trust in God's perfect plan for me, my baby and our family and therefore I am very encouraged. And yet there is a pain I just can't describe. Thankfully, His mercies are new every morning!!!

Best I can tell - treatment for clubfoot entails serial casting which begins around 1-2 weeks of age. The casts are changed each week and the feet are manipulated slowly to the correct position. This generally last 6-8 weeks. The heel chords are then released followed by another cast for 3 weeks. After that, a brace is worn - possibly all day for a few months, but then just at night for 2 years. There is another treatment that involves lots of physical therapy, stretching, taping, etc = but also last 2 years. Both have about a 95% success rate according to a study I read about. This is encouraging news.

We would really prefer not to walk this road, but we are willing to go where God sends us. I know that if this is the journey He has called us to, He will fully equip us to walk it. I have already seen Him faithful in that. Sometimes people say, "God never gives you more than you can handle." I can assure you that giving me a child with Down Syndrome was more than I could handle. Thankfully, God has been faithful to equip us with every step ... and I know He will do the same with this.

I am sure I will have more information as the weeks go on - and hopefully more specifically from an orthopedist who will treat the baby after birth (if necessary, of course ... I am still believing God for that miracle healing!!!!)

Thanks for praying for and with us!

Its another ... BOY!!!

We are very excited to learn that we are expecting another baby boy!
We also learned from our ultrasound that our sweet boy has club feet. They are called "club" because it resembles a golf club. His little feet both turn in at the ankles. He is otherwise perfectly developing and healthy, but we are heart broken to begin a journey with a birth defect once again. Not the words any parent wants to hear - and certainly not twice.

We really don't have a lot of information yet. We've been told that this is fixed "relatively easily" - easily if its not YOUR baby :) - and we are grateful for that.

We trust that God is in control and we know that He has a perfect plan for our little guy. And we are anxious to see His plans play out. I am only 18 weeks along, so we have some time before this baby's arrival. During that time, we are asking everyone to pray for COMPLETE HEALING! We know God is a God of miracles and we want to flood heaven with prayers for this baby. We accept and praise God for whatever outcome He desires, but will BELIEVE for a miracle! Please join us in believing and trusting God in this situation.

This has already been a roller coaster of emotion and I have no doubt it will continue to be as we move forward. I will update facebook and our family blog as I learn/know more information. In the meantime, please be praying specifically for healing as well as wisdom & peace for Ed and me - and feel free to pass this on to anyone else you know that will be a faithful prayer warrior with us!
Thanks, Angela